We are home!  We were discharged on Friday and are now home.  It went well the first night home.  He slept well, not sure how well I slept.  I think I was worried about not hearing him.  The next day was a little rough:)  We are trying to get into a routine, along with weighing him everyday and taking his oxygen levels.  I then have to email these to the nurse each Monday.  Today was our first visit to the pediatrician's office.  He was very happy with Easton's progress.  He weighs 7lbs now and is 20 1/2 inches long.  It was quite the ordeal to get out of the house this morning!  I forgot what it is like to have an infant.  I decided later that I should have packed the diaper bag the night before:)  Hadn't really thought much about it until we were ready to walk out the door.  I was also trying to figure out when he would need to eat next, which of course happend to be when we would not be at home, so I had to pack a bottle as well:)  Had to make a run to McDonald's Drive-thru for hot water to heat it up!  I must say I was glad when we got home!!!  Please continue to keep us in your prayers during this time for healing as well as for my sanity:)!   Praise be to God for he is good!   I am a firm believer that God only gives us what he knows we can handle.  We feel very blessed!

Yesterday was a good day!  Easton is doing very well with his feedings.  Daddy gave him about an ounce and a half yesterday afternoon, and he kept that all down.  I think we found the secret to feeding him:)  He wants to take it down so fast, but we give him a little then burp him and then give him the rest and that seems to be working. 

They have said they think that we will be home on Friday!  Yeah!  Which will then mean we will start the rounds of doctoring until our next surgery.  I will keep updating the blog so that everyone can see how things are going.  Hopefully this guy is as content at home as he is up here in the PICU.  All of the doctors and nurses have been so wonderful.  I sure can't imagine being anywhere else.  I am ready to be home, but have sure met a lot of really great and talented people, who we will continue to see!  God is good and has healed Easton enough to bring him home until our next surgery which we will find out more when that will be after our follow up cardiologist apointments.  Thank you all for your thoughts and prayers and continue to pray for us in the months and weeks to come.  I will update next week after our first cardiologist apointment. 

Easton had a good day yesterday and today.  Today they started his feedings again!!!  Yeah!   They also talked about taking his arterial line out, but decided to wait, incase he doesn't do well feeding.  He is still getting his nutrients through the IV until we get him to full feedings.  Hopefully that won't take too long.  He continues to gain a little more each day.  It is always confusing because they weigh him in Kilograms, so I think he now is about 7lbs.   I found out about his little temper yesterday:)  The nurse had to change his dressing on one of his PICC lines, and he was not happy about it one bit.  Even after she was done, he was just mad!   Learn a little more about his quirks each day.  The doctors are happy with everthing else otherwise.  So we are thankful for that.  Praise God!!!  We are so blessed and are thankful for all of the prayers that have been answered this far. 

Easton has had a good couple of days.  The doctors are happy with his progress.  They are waiting until Monday to start feeding him due to the rise of his lactic acid levels earlier.   The levels have gone down, but they just want to play it safe.  So for right now, he gets tylenol and sugar water.  He still really likes his binky though too!!!  I got my CPR class taken, so we just need to have Daddy take his before we can bring Easton home.  Please continue to send those prayers up as we are not sure when he will have his next surgery, but it could be sooner than we originally expected, but will know more once he has another echo done. 

Easton had a good day today and Mommy got to hold him for most of it!  Yesterday we took a step back.  He started produceing lactic acid, which is an indicator that something wasn't right.  They stopped his feedings and his lactic acid levels came down.  Which was good, but they are going to continue to just feed him via the TPN.  This is an IV that he will get all of his nutrients from.  He gets a little agitated since he doesn't have anything in his belly, but not too bad.  Which is good.  I told Tyler that he is already very spoilied because he knows when I am there and fusses until I hold him and then he is fine:)  Funny how quickly they figure that out:) 

Today his levels and heartrate were back down where they would like to see them so that was also good!  God has answered our prayers again!  We are very thankful for that.  He seems much less agitated then he has the past couple of days.  Please continue to pray for us.

Easton had a great day!  The ventilator is out!!!!  Yeah!  Rounds went well this morning!  Doctors all think he looks great!  May even start feeding this afternoon or tomorrow!  Our prayers continue to be answered!  We had to laugh as the nurse told us yesterday that he probably won't have much of a scar and we think he will be disapointed that he won't have anything to show anyone:)  We are very blessed!  He also got an ounce of milk which he took down right away!   He was not very happy when he got done because he wanted more:)  I was able to prop him up, not quite holding him, but getting closer! 

Easton had a good night last night.  Hopefully the ventilator will get to comeout today!  He is tolerating the lowering thus far.   So we are keeping our fingers crossed. They took the drainage tube out yesterday and the nurse said a lot of times that helps them breath a little better.   All of his levels are good.  They also put in a feeding tube yesterday and he is getting 4ml of milk.  This does not go into his stomach, but they are basically priming the intestine to get it to work again.  I was able to be here for when the Doctors came yesterday learning a lot about the heart more than I ever thought I would!!!