Thursday, April 28, 2011

Easton is growing like a weed!  Newborn clothes no longer fit!  He has really started smiling and you have to love all of the involuntary reflex movements.  He sometimes scares himself.  I thought he might wear 0-3 months for a while, but he is so long now that he is close to start wearing some of the smaller 3-6 month clothes!  Monday is going to be a busy day for us as he has 3 doctor appointments that day.  He does very well sleeping at night.  I know we will get him sleeping through the night and then it will be time for his next surgery:)  Hopefully it won't take too long to get him back on track after that.  We still don't have a set time when the next surgery will be. It will all depend on him and how he grows.  I hope that it will be this fall if not later rather than sooner so he has more time to grow, but we will see!  He has (knock on wood) been a very good baby this far.  He doesn't cry much unless he is hungry and then he wanted it yesterday:)  I will update again after our cartiologist appointments on Monday along with his  pediatrician appointment where he will begin his shots.  Can't wait for that:)  God is good!

Wednesday, April 13, 2011

Easton had his second cardiologist appointment today.  His doctor was very happy with how he looked and sounded.  He weighs about 8 1/2 lbs and is now 22 inches long!  Ty thinks he is going to be nine feet tall at the rate he is going:)  The shunt is working great, and the PDA arteries have not closed yet, which may actually work to our advantage.  It may allow him to grow a little more before the next surgery.  Still not sure when that will be.  Will just depend when he outgrows the shunt.  Sure can't believe that he is already 6 weeks old already!  The kids are sure glad to have him home.  They both are very helpful (sometimes too much:))  They sure love their little brother!  I go back to work in a few weeks so trying to findsome one to come baby sit a few days a week.  He is such a good baby.  Only gets up once to eat in the middle of the night so really can't complain!  Since it has been so nice out we have been able to go outside for walks.  I keep a bottle of hand sanitzer in the stroller!  I don't think I ever thought I would be a germaphobe!  God is good and continues to bless our family.  With God all things are possible Matt 19:26

Saturday, April 2, 2011

Whew!  Made it through our first week at home!  I think we now have some sort of a schedule down!!!  We have 3 doctors appointments next week so that is going to be interesting trying to get to those on time!  He is doing very good.  His heart rate and oxygen levels have all been where they were at the hospital.  He is now over 7lbs!  Big Boy!  He is getting long.  He is still very skinny though!  I am going to have to get the three month clothing out and washed up since he is about too long for the newborn clothes.  Still wearing newborn diapers though.  Hopeing that the remaining weeks go as smoothly as this one did!  Ely is enjoying calling him "Mini Me" since he looks so much like he did when he was a baby!  He thinks that is pretty cool!  Ella just wants to mother him!  But that is pretty much what I expected. His hais is hilarious!  Not sure if it will ever lay down, but I guess time will tell!  We are a very blessed family!  God is good!

Monday, March 28, 2011

We are home!  We were discharged on Friday and are now home.  It went well the first night home.  He slept well, not sure how well I slept.  I think I was worried about not hearing him.  The next day was a little rough:)  We are trying to get into a routine, along with weighing him everyday and taking his oxygen levels.  I then have to email these to the nurse each Monday.  Today was our first visit to the pediatrician's office.  He was very happy with Easton's progress.  He weighs 7lbs now and is 20 1/2 inches long.  It was quite the ordeal to get out of the house this morning!  I forgot what it is like to have an infant.  I decided later that I should have packed the diaper bag the night before:)  Hadn't really thought much about it until we were ready to walk out the door.  I was also trying to figure out when he would need to eat next, which of course happend to be when we would not be at home, so I had to pack a bottle as well:)  Had to make a run to McDonald's Drive-thru for hot water to heat it up!  I must say I was glad when we got home!!!  Please continue to keep us in your prayers during this time for healing as well as for my sanity:)!   Praise be to God for he is good!   I am a firm believer that God only gives us what he knows we can handle.  We feel very blessed!

Thursday, March 24, 2011

Yesterday was a good day!  Easton is doing very well with his feedings.  Daddy gave him about an ounce and a half yesterday afternoon, and he kept that all down.  I think we found the secret to feeding him:)  He wants to take it down so fast, but we give him a little then burp him and then give him the rest and that seems to be working. 

They have said they think that we will be home on Friday!  Yeah!  Which will then mean we will start the rounds of doctoring until our next surgery.  I will keep updating the blog so that everyone can see how things are going.  Hopefully this guy is as content at home as he is up here in the PICU.  All of the doctors and nurses have been so wonderful.  I sure can't imagine being anywhere else.  I am ready to be home, but have sure met a lot of really great and talented people, who we will continue to see!  God is good and has healed Easton enough to bring him home until our next surgery which we will find out more when that will be after our follow up cardiologist apointments.  Thank you all for your thoughts and prayers and continue to pray for us in the months and weeks to come.  I will update next week after our first cardiologist apointment. 

Monday, March 21, 2011

Easton had a good day yesterday and today.  Today they started his feedings again!!!  Yeah!   They also talked about taking his arterial line out, but decided to wait, incase he doesn't do well feeding.  He is still getting his nutrients through the IV until we get him to full feedings.  Hopefully that won't take too long.  He continues to gain a little more each day.  It is always confusing because they weigh him in Kilograms, so I think he now is about 7lbs.   I found out about his little temper yesterday:)  The nurse had to change his dressing on one of his PICC lines, and he was not happy about it one bit.  Even after she was done, he was just mad!   Learn a little more about his quirks each day.  The doctors are happy with everthing else otherwise.  So we are thankful for that.  Praise God!!!  We are so blessed and are thankful for all of the prayers that have been answered this far. 

Saturday, March 19, 2011

Easton has had a good couple of days.  The doctors are happy with his progress.  They are waiting until Monday to start feeding him due to the rise of his lactic acid levels earlier.   The levels have gone down, but they just want to play it safe.  So for right now, he gets tylenol and sugar water.  He still really likes his binky though too!!!  I got my CPR class taken, so we just need to have Daddy take his before we can bring Easton home.  Please continue to send those prayers up as we are not sure when he will have his next surgery, but it could be sooner than we originally expected, but will know more once he has another echo done.