Well today started off pretty much like the rest.  Easton had a really good night.  He ate really well yesterday after he had his motrin.  His poor little throat is still sore.  The nurse practioner came in before the doctors rounded and asked me how I felt about going home today, I was surprised but told her that yes we were ready.  I had actually been thinking about it because we were only on antibiotics and he only had the one line left but really didn't think it would be possible.  After the doctors.rounded they decided to send us on our merry way.  after all they do we finally left the hospital at 2:15 pm.  So tonight we are home!  It is so nice to have everyone under the same roof!  His brother and sister sure missed him:  and I think he missed them too!  We are so blessed.  We will have several doctors appointments in the up coming weeks but he is healing very nicely.  We pray for continued healing as he is a little sore still.  I will continue to update just not as frequently.  Thank you all for your support!

Easton had a good night last night.  They took his arterial line out this morning so he only has one line left.  Hope to be heading home this weekend but depends on how he eats.  His throat is very sore from the suctioning that was done and it made his throat raw.  He has done pretty well this morning while I have been here.  Eating was the focus for today, and so far we are off to a good start.  He is now also canula free!

Easton had a good night last night.  However when I got to the hospital this morning he felt a little was and was borderline running a fever.  They decided to give him an antibiotic and think it may be the start of an ear infection.  By the afternoon he was back to his old self even smiling at some of the nurses:).   I finally got to hold him today as I haven't held him since last Thursday.  Tyler came over and he smiled at him today and that made Daddy feel very good:).  Hoping that he sleeps well tonight.  Think he may be getting his days and nights mixed up.  Thank God for his continued healing!  Blessings to all.

Easton had another good night last night.  He got a new cousin in the mix as well!  Very happy for his safe arrival.  They took out one o Eastons Ivs and is now on the regular canula as well.  He was able to have a "bowel movement so he is feeling much better.  He has been able to eat some which makes him very happy.   God is good!

Easton had another good night last night.  They took the drainage tubes out today.  Hopefully his cathater will come out soon.  The doctors are very happy with how he is doing!  We are very thankful for that.  The did decide to put him on a high flow canula but are starting to wean him off of that to a regular one then nothing.  Thank you for your continedb prayers!

Easton had another good night.  Tyler and I were able to be there when they took the ventilator out today.  Right now he is on a regular flow canula.  Depending on how he does with this, they may try feeding him in a few days.  If he doesn't tolerate it well then he will need to go to a high flow canula.  Praying that all goes well and that he stays on the regular flow canula.  He is currently on IV food.  So he is getting nutrition ,but has an empty belly.  God is good!

Last night Easton had a good night.  They took him off them paralytic so he is starting to twitch.  The Doctors are very happy with how he is doing.  He has a small stenosis in the pulmonary artery but nothing of great concern.  Just a small narrowing of the pulmonary artey.  He still looks great.  We are very blessed to have such great care.  God is good.

Easton had a good night or he"behaved himself" as Dr. Fotuna puts it.  His oxygen levels are at 98 which is great.  He looks very good.  We found out today that during surgery they take his body temp down to 64.4 degrees.  They are still trying to keep him cool today and will slowly start waking him up tomorrow.  He is on 45% oxygen and had an echo done this morning.  We are praying that looks good.  Thanks for the contined thoughts and prayers.

Tyler and I were able to see him and kiss his head.  He is on a ventilator and will be for the next couple of days.  He is still very handsome:)  We both were happy to see his oxygen levels at 96% rather than his normal 75%.  We are both very exausted and emotionally drained but praise God for taking care of our son!  Many prayers have been answered!  I have learned what it means to pray without ceasing!  God is Good!   We appreciate all of you inspiring messages ,prayers and thoughts.  God bless you all.

Surgery is Complete!!

Today finally ended after a long 10.5 hour surgery.  After they got in there they found there was more that needed repaired then they originally thought.  They put in a new pulmonary valve.  He had to carve out quite a bit of muscle to make way for the pulmonary valve.  He also put in the left pulmonary artery and then had to put in a right artery as well(as I understood.)  They had originally only done the left but then when they took him off the heart lung machine he struggled quite a bit.  He also closed the hole between the bottom two chambers.  He then had to create another small whole to help at this point, but not in the same place the other one was.  This hole they can close in a cath lab if they need to.  They will keep him very sedated for the next few days as the first 12 to 24 hours is the most critical.  Dr. Fortuna is very happy with the surgery and doesn't expect anything to happen but they will be monitoring him very closely.   v

Well he is still in the operating room.  They decided to make a few more repairs.  We arent sure what they are yet it will probly be a few more hours.  He has been in there since 9:30 this morning and it is now 6:30 pm.  We are ready for him to be done but also want them to do what they need to do.  Keep on praying!

Repair surgery

Well today is going well so far.  We had to be at the hospital at 6 am.  They took Easton back at 8.  Surgery started at 9.  They have been giving us updates periodcally throughout the day.  They are now starting to take him off the heart lung machine which bypasses his heart and lungs during the surgery and gets blood and oxygen to the rest of the body.  They are doing what is called warming  and bringing his body temperature up so they can start taking him off heart lung.  This is one of the first steps to this.   I will update later when I know more.  Prayers have been and are being answered.  Keep sending them as we have a few days to get through to make sure everything is working properly.