Friday, September 9, 2011

Tyler and I were able to see him and kiss his head.  He is on a ventilator and will be for the next couple of days.  He is still very handsome:)  We both were happy to see his oxygen levels at 96% rather than his normal 75%.  We are both very exausted and emotionally drained but praise God for taking care of our son!  Many prayers have been answered!  I have learned what it means to pray without ceasing!  God is Good!   We appreciate all of you inspiring messages ,prayers and thoughts.  God bless you all.

Surgery is Complete!!

Today finally ended after a long 10.5 hour surgery.  After they got in there they found there was more that needed repaired then they originally thought.  They put in a new pulmonary valve.  He had to carve out quite a bit of muscle to make way for the pulmonary valve.  He also put in the left pulmonary artery and then had to put in a right artery as well(as I understood.)  They had originally only done the left but then when they took him off the heart lung machine he struggled quite a bit.  He also closed the hole between the bottom two chambers.  He then had to create another small whole to help at this point, but not in the same place the other one was.  This hole they can close in a cath lab if they need to.  They will keep him very sedated for the next few days as the first 12 to 24 hours is the most critical.  Dr. Fortuna is very happy with the surgery and doesn't expect anything to happen but they will be monitoring him very closely.   v

Thursday, September 8, 2011

Well he is still in the operating room.  They decided to make a few more repairs.  We arent sure what they are yet it will probly be a few more hours.  He has been in there since 9:30 this morning and it is now 6:30 pm.  We are ready for him to be done but also want them to do what they need to do.  Keep on praying!

Repair surgery

Well today is going well so far.  We had to be at the hospital at 6 am.  They took Easton back at 8.  Surgery started at 9.  They have been giving us updates periodcally throughout the day.  They are now starting to take him off the heart lung machine which bypasses his heart and lungs during the surgery and gets blood and oxygen to the rest of the body.  They are doing what is called warming  and bringing his body temperature up so they can start taking him off heart lung.  This is one of the first steps to this.   I will update later when I know more.  Prayers have been and are being answered.  Keep sending them as we have a few days to get through to make sure everything is working properly.

Monday, August 22, 2011


Where to begin...  Easton had a cath lab on August 16th.  This is where they go in through the groin and up that artery into the heart.  While in there, they put some dye in to take some pictures of the heart.  they have decided that in 2 to 4 weeks they will schedule his surgery.  His Cardiologist is recommending they do the repair, but they will discuss his case on Monday as a team.  I am relieved to know that my Kiddo will soon be repaired for a few years.  Dr. Shah thinks that they will put in a new valve and a new left artery becasue the arteries are small.  The right one is slightly bigger so I am not sure if they are going to do anything with that at this point.  He is getting so big!  Love it! 

Wednesday, June 15, 2011

Easton had his Cardiologist apointment on the 3rd of June.  I know, I am a little behind.  Dr. Shah is very happy with his progress.  He even took him off one of his medications.  He is very pleased with how he is doing.  We still are not sure when his next surgery will be.  His levels are starting to slowly decrease the bigger he gets so the shunt is working as it should and this is what the plan was so I guess we are going according to plan:) 

He is getting to be such a big boy!  Almost 13 pounds now!  He has been sleeping through the night so mommy and daddy are getting more sleep!  He still has crazy hair!  I just can't bring myself to have his hair cut yet!  He is a very happy baby and we couldn't ask for more!  Big Brother and Sister really think it is great that he will smile at them now, so of course they want to be more involved now!    I told Ely the other day that one day he is going to want to go everywhere he does . Not sure if he really believed me:)  Can't wait to see his reaction when that day arrives! I can't believe that he is already 3 and a half months old!  Where has the time gone. 

 All else is well at the Horner House,  we are busy with tumbling and T-ball right now and love every minute.  Along with going to the Doctor, but that all seems second nature now.   We feel very blessed, God is good !  Until next time! 

Tuesday, May 10, 2011

Easton had his cardiologist appointment last Monday.  They are very happy with his progress.  We are still not sure at this point when he will have his surgery.  We did find out that if they think that he will need his next surgery this winter that they will do it this fall because they do not like to do it when there are so many more germs.  He is a big growing boy!  He weighs over 10lbs now!  I can't believe he is already 2 and a half months old!  One of the nurses that we had up on the PICU was in with Cardiology so that she can become a nurse practitioner so it was nice to see her and catch up with her.  She couldn't believe how big Easton had gotten and how big his hair was:)  He also had his 2 month check up and started his shots:(  We had to check with the cardiologist to make sure that it was ok for him to get them because sometimes they don't want you to due to the stress that it can put on the child, but Dr. Shah said that Easton was doing so well that he should have them.  Hate to see them cry but am glad he is doing well enough to have them. 

We have been busy at home.  Easton went to church for the first time on Mothers day, it was pretty special :)   I started back to work today and the other two have been such a big help!  I think this will help to make a more structured schedule for us with house duties (that is my goal anyway:) So thankful for the support we have including our family!  Grandma Krehbiel is watching them three days this week and Grandma Horner will have them on Wednesday.  We feel very blessed for all of the prayers we have received and have seen what the power of prayer can do!!!!!  Blessings to all of you!